Time out bench, mattress genie, RAM Mount cup holder, stainless steel straws with rubber tips so I can recline my chair and get back up.
We use the time out bench to ear at normal height tables. I can’t lift my arms well and this helps.
We also use a bed genie to raise me to a sitting position. My core muscles have become weaker.
Here’s the tool we created so I can operate the joystick after reclining and raise myself back up. This helps me be a bit more independent.
It’s a 15 inch stainless steel straw. The rubber pieces are used on pencils by arthritics and others who need a better grip on their pencil.
RAM mounts makes all kinds of mounts for just about anything. Here’s my cup holder. it’s on a gimbal mount.
Like I said in another post, we adapt and change so we can live life better.
This post is from Puerto Vallarta. Cruising gives me a lot of independence but I can never be shy about asking for help.
Choose happiness and choose to be kind. My disease could depress me (well, sometimes it does) but a good attitude beats being angry all the time. I don’t ask WHY because I will never know. But I can control my attitude.
Seven days have flown by. At 7:15 this morning it was warm enough to go out on the balcony at which point Ruby started loading me up with a step stool and other things like pillows, blankets, towels and my litte table.
Sweetly, she says, “I just want to see how this works.”
I have sporadic inclusion body myositis, a neurological muscle condition that causes the large muscles to deteriorate. There is no cure and no treatment. Google it.
I don’t play guitar and my only real claim to fame is that Peter Frampton was recently diagnosed with sIBM.
So, adapting, I cannot lift my arms and holding forks and spoons is difficult. Here are a few pictures showing our adaptations. Notice the green on the bottom of the table. Those green strips keep the table from sliding. Also notice my water glass. I have some dysphasia and drink a lot of water at meals.
The table is a time out table from Amazon the red tube can also be found under disabled utensil holders.
I mentioned we are cruising for 70 days. I go all over the ship and I always ask for help.
In the explorations lounge at the bow looking out a large window seeing the occasional whale, reading a book, relaxing and waiting for Ruby to get back from her facial that she won in a raffle the other day.
Life is pretty darn good. We just finished lunch of tilapia with cheesecake for Ruby and a chocolate torte for me. It was our first meal of the day.
The ship is a bit northwest of Los Angeles and we get to San Diego tomorrow.