Things we use to make life easier

Time out bench, mattress genie, RAM Mount cup holder, stainless steel straws with rubber tips so I can recline my chair and get back up.

We use the time out bench to ear at normal height tables. I can’t lift my arms well and this helps.

We also use a bed genie to raise me to a sitting position. My core muscles have become weaker.

Here’s the tool we created so I can operate the joystick after reclining and raise myself back up. This helps me be a bit more independent.

It’s a 15 inch stainless steel straw. The rubber pieces are used on pencils by arthritics and others who need a better grip on their pencil.

RAM mounts makes all kinds of mounts for just about anything. Here’s my cup holder. it’s on a gimbal mount.

Like I said in another post, we adapt and change so we can live life better.

This post is from Puerto Vallarta. Cruising gives me a lot of independence but I can never be shy about asking for help.

Choose happiness and choose to be kind. My disease could depress me (well, sometimes it does) but a good attitude beats being angry all the time. I don’t ask WHY because I will never know. But I can control my attitude.

Hope this helps.

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Sneaky Surprise!

Seven days have flown by. At 7:15 this morning it was warm enough to go out on the balcony at which point Ruby started loading me up with a step stool and other things like pillows, blankets, towels and my litte table.

Sweetly, she says, “I just want to see how this works.”

Then the phone rings.

Surprise, room service breakfast is here.

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We adapt, inventing and improvising as things change

I have sporadic inclusion body myositis, a neurological muscle condition that causes the large muscles to deteriorate. There is no cure and no treatment. Google it.

I don’t play guitar and my only real claim to fame is that Peter Frampton was recently diagnosed with sIBM.

So, adapting, I cannot lift my arms and holding forks and spoons is difficult. Here are a few pictures showing our adaptations. Notice the green on the bottom of the table. Those green strips keep the table from sliding. Also notice my water glass. I have some dysphasia and drink a lot of water at meals.

The table is a time out table from Amazon the red tube can also be found under disabled utensil holders.

I mentioned we are cruising for 70 days. I go all over the ship and I always ask for help.

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San Diego

We got a bit of a late start but we found a Rite Aid and bought ibuprofen that we forgot.

Then we went on the Midway and saw where history was made during the time after WW 2

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San Diego on Eurodam

Going to find a store to buy ibuprofen, visit the Midway (maybe I will get to use the amateur radio that is on board) and we’re just going to look around.

Here’s to a well placed gang plank.

Maybe we will try out a bus, they’re supposed to be easily accessible. I have their MTS app.

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Here I sit

In the explorations lounge at the bow looking out a large window seeing the occasional whale, reading a book, relaxing and waiting for Ruby to get back from her facial that she won in a raffle the other day.

Life is pretty darn good. We just finished lunch of tilapia with cheesecake for Ruby and a chocolate torte for me. It was our first meal of the day.

The ship is a bit northwest of Los Angeles and we get to San Diego tomorrow.

This is awesome!

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Ok, here it is!

73 days, Panama Canal, Western Caribbean, key west, Dominican Republic, Amazon River, four back to back cruises.

We’re loving it and will be back December 18.

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Make it like home

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It’s Monday

It’s Monday, I know because the carpet in the elevator says it is Monday.

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Kindness and patience

Our first room was labeled “fully accessible” but it was virtually impossible to navigate.

It had a post in the middle, a couch that had to be moved and almost no room to move between the bed and desk.

And, two ceiling fans that ran all night long.

The new room is really “accessible”.

Holland America staff came through. We had the housing manager and others working on our problem. They fixed it in two days.

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